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Introducing the Jack & Julie Narcolepsy Scholarship
Today, I’m thrilled to unveil the Jack & Julie Narcolepsy Scholarship, the first-ever scholarship supporting students with narcolepsy while also raising awareness about narcolepsy in high school...
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Harvard Medical School’s New Narcolepsy Website
I’m so thrilled to share Harvard Medical School’s new Narcolepsy Website - a fantastic user-friendly resource for patients and supporters alike. There are videos, PDFs and basic information about...
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Join Julie for International Narcolepsy Broadcast on Suddenly Sleepy Saturday
Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the...
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10 Things You Didn’t Know About Narcolepsy
In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy: 10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical...
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Narcolepsy 504 Plans for High School Students – Tips for Parents by Diana Brooks
REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers...
View ArticleSchool Accommodations for Narcolepsy
I compiled this list directly quoting people with narcolepsy and their family members who reported on accommodations received for narcolepsy during education (from grade school to graduate school)....
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Meet the Jack & Julie Narcolepsy Scholarship Award Recipients 2014
The Jack and Julie Narcolepsy Scholarship is delighted to announce that two recipients of the inaugural scholarship 2014 are Kendra Larrabee and Jacob Zeiher. We are thrilled to award both Kendra and...
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NARCOLEPSY: NOT ALONE on NBC News in Chattanooga TN
NARCOLEPSY: NOT ALONE is on the news! I’m thrilled to share that NBC News Channel 3 WRCB in Chattanooga, TN featured the NNA campaign in a terrific segment with my friend and fellow advocate, Valencia...
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Narcolepsy on The Doctors Show
On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of...
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Congratulations Winners: Narcolepsy Awareness Giveaway!
Thank you to everyone who submitted new NARCOLEPSY: NOT ALONE photos during the First Birthday Giveaway Contest! I finally just drew the winners: Rayanne in the UK Kellie in Florida Suzy in Australia...
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Unveiling the new NARCOLEPSY: NOT ALONE website!
I’m so excited to share Project Sleep’s new NARCOLEPSY: NOT ALONE™ campaign website at: www.narcolepsynotalone.com. When I started this campaign last year, I never imagined it would become such an...
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Speaking in Spoons – The Spoon Theory and Narcolepsy
My boyfriend and I speak in spoons. If you don’t know what I’m talking about, read The Spoon Theory by Christine Miserandino now. Seriously, stop everything and visit:...
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Why I Love the Jack & Julie Narcolepsy Scholarship
I’m thrilled to share that Project Sleep unveiled the Jack & Julie Narcolepsy Scholarship 2015 to support students with narcolepsy while also fostering awareness of this often misunderstood...
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5th Grader Raises Narcolepsy Awareness at School
This past year has been very tough for Daishia, age 11, who was recently diagnosed with narcolepsy with cataplexy. In addition to narcolepsy, she is also dealing with a seizure disorder, migraines and...
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Meet Collin and Conner – An Amazing Friendship
Conner and Collin Meet Collin and Conner, two friends in the 5th grade in Columbus, Mississippi. I’ve always loved thier NARCOLEPSY: NOT ALONE photo, but recently learned about the friendship behind...
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Running a Marathon for Narcolepsy Scholarship
It’s official! I’m training to run the San Diego Rock n’ Roll Marathon on May 31, 2015 to support the Jack & Julie Narcolepsy Scholarship. Please consider supporting in one of two ways: Purchase a...
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Why I am Running a Marathon
Recently, I was featured as a Boston College “Soaring Eagle“ – for writing my memoir and founding Project Sleep. This was a huge honor, but also very ironic. While at BC Law, I felt like a total...
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Visiting Australia for the Narcolepsy Support Australia Conference
“What could I say that they don’t already know?” This question haunted me in the months, weeks and days leading up to Narcolepsy Support Australia Conference. Over a year ago, when NSG Australia’s...
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Narcolepsy Podcasts on SleepHub
During my recent visit to Australia, I got to meet Dr. David Cunnington, a sleep doctor in Melbourne. Last fall, I’d “met” Dr. Cunnington virtually when we were both interviewed on the Daily Edition...
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DALLAS, will you SLEEP WALK with me?
I’m sooo excited to announce that I’ll be visiting Texas for SLEEP WALK DALLAS FORT WORTH on June 13, 2015. I can’t wait to raise sleep awareness with my DFW friends, plus I hear there’s face...
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